15 August

Summer Update

This spring and summer has been some adjustments in therapies with mixed results.  The most influencing adjustments have been in Matt’s drug therapies.  Non have been with positive results so far.  A couple have even set us back as far as Matt’s eating.  We have made adjustments and gotten back on track.  We are currently tapering Matt off another drug that didn’t  give enough positive result and really seemed to have made Matt stressed.  I have spent the past couple of weeks coordinating all Matt’s therapist by putting them in contact with one another so we are all working toward common goals.  That should change things in the coming months. 

Matt has continued to become much stronger and more aware of direction and verbal instruction, everyone sees that.  He is now working very successfully on core strength and control.  All part of the road to getting him standing and sitting up on his own.  Matt is also in the pool swimming weekly with Lisa and I able to manage that on our own.  Usually 1 - 2 hour sessions at a time.

I have also investigated a alternative therapy thanks to Matt’s friend Mike.  Mike has been seeing a doctor who is a specialized sports injury trainer.  We will be beginning that treatment in the next couple of weeks once we work out the scheduling.

Still all good stuff with a few hiccups. Still moving forward!

I apologize for not writing sooner.  Been a rough summer with personal issues.  Keep your heads up.

God Bless

3 Responses to “Summer Update”

  1. Debbie Benson Says:

    Mario and Lisa,

    You both have done an amazing job over these last 3 years with your son. He has made incredible advances, due to the two of you. I am in awe of your hard work, dedication and commitment that I see in your family. Your lives took a direction that was totally unplanned and unexpected. You have dealt with this situation with grace, dignity and love.

    Getting all the therapists to communicate with each other and be on the same page will greatly help Matt to meet his goals.

    Your family are in my thoughts often. I enjoy visiting with Joan at church.

    Debbie Benson

  2. Margie Falkner Says:

    Found you again!! lost my info from computer in the move to Tucson! So, lots of progress!
    That is wonderful news. Press on, give my love to Matt. Hope to see you in the fall when we take a vacation to SoCA and northern AZ. Keeping you in our prayers!

  3. Pamela Deardorff Says:

    God bless all that you are doing for Matt. We still pray for him and your family. You are amazing. God give His strength to those that will rest in Him. Please let Matt know that we are cheering him on.

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