19 November

Matt smiles

Matt’s made much more progress over the past 4 weeks.  Matt had his eye exam/evaluation early last week and from where he started to where he is now with his vision is about a 70% improvement!  Matt is wearing reading glasses now at 1.75.  His new eyeglass prescription will be at 1.75 with a very mild prism to the right.  He has noticeably improved his range of vision and at a 1.75 he is being challenged visually but that’s what keeps him improving so far so as long is that’s working that’s what we will continue to do hopefully to get more improvement.  We have also been doing music therapy over the past 4 weeks and we all can see much more awareness and we’re thinking at least partly due to the  **music therapy involvement of all the different regions of his brain.  With all that is going on with these therapies as well as the continued tri-weekly sessions with Spencer we are seeing much improved physical strength and endurance.  The other thing that is showing are the personal emotions that are becoming much more of Matt’s day.  Smiles when we are playing around with him or just talking about silly stuff.  We can tell he gets what’s going on and if I tease him enough he get this big grin that at times turns into the toothy smile that we’ve all been missing for so long.  It’s fun to see.  I’m waiting to get him going like that one time and have him bust out laughing.  I’m working on it.  We got Matt out to Balboa Park this past Sunday and went in to the I MAX Theatre to see “Wild California”.  Matt did so good.  Got a little sideways on some of the aerial sequence but I held his shoulders and told him that I was right here with him and I could feel him relax and he stayed right with the movie.  It was very cool.  The week before we took Matt to see “Amelia”.  He also did very well with this.  I sat in the row in front of Matt watching him watch the screen.  He looks and scans and follows the characters just like everyone else does that’s sitting right next to him.  We do this all as part of the process, to keep him involved and stimulated.  It is also a great way to observe him and see how far he has come. 

Last week we rounded up the results of the MRI and EEG tests and dropped them off at The Neurology Center in Encinitas where Dr. Lobatz can review the results.  We will be waiting to hear from his office and probably being going in sometime for another consultation hopefully in the not to distant future.  Matt goes in this week for a chest x-ray and v/q scan to see that his lungs are clear.  This is part of the process that Kaiser is now recommending so that we can possibly get him safely off coumadin.  We’ll have to wait and see what the results of these latest test are.

I would like to thank all for your support and please keep Matt in your positive thoughts and prayers.  It’s working!  God Bless

** Reference reading; “This is Your Brain on Music” by Daniel J. Levitin

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