Matt had his MBS test earlier this month and did real well.  The therapist told us that we were doing a good job and to slowly kick it up with more oral feeding and we have been.  Matt’s eating more each day or two.  Lisa stays on it and he’s coming right along.  Matt’s also been doing some cool things with his right hand and arm, he has alot of strength and likes to show it off when he can.  We also have him pushing and pulling with his left arm.  He has made a real noticeable improvement with that with some of the overhead equipment we have set up in his room.  Our house has become a therapy gym with all the equipment we have built but it works out great for the times Spencer is not around.  We are keeping that boy very active with different challenges all day everyday.  As he improves we’re always having to find ways to change it up to continually make things more challenging for him.  It’s quite a process and we’re all learning alot with all that we gain with Spencer 3 days a week.  Speech at SDSU has just started this week and that’s a whole other thing, more learning, more challenges.  What we are in search for now is someone that can help us with the physicolagy  that goes with all of this.  As Matt is able to do more, there are things that he has a hard time with and we are all seeing a level of frustration that we weren’t seeing before.  I feel his frustration and I can only imagine what it must be like for him.  We have to really spend the time talking him through it so he doesn’t give up.  As he does things we are continually encouraging him to keep going.  We are also seeing his unwillingness to perform in front of an audience.  He’ll do things for us and just a few people in the room that he has grown comfortable with but in a strange situation with unknown people in the immediate area he just shuts down.  We need help with someone that understands what could possibly be going on in his mind.  It’s really hard to figure out.  Anyone with some insight please contact us.  We’ve been told this is definitely a phase that he has to work through and it’s common but it would sure be nice to understand a little better so we can help him through it.  Thanks all for the continued help, thoughts and prayers.  By the way, Brittney passed her state board test and practical exams today up in LA and is now a licenced cosmetologist.  Yeah Brittney!

Posted in Matt's Progress | Comments (0)