Hey everyone, Matt continues on the long road to recovery. We are still working out details with Matt’s insurance carrier in regards to his home care and rehabilitation. That’s a full time job in itself but we’re getting through it. Matt is doing lots more what they call “purposeful movement”. Readjusting himself, no not the way you boys are thinking, I mean overall repositioning, rolling over in bed from his back to side. That’s huge, it’s reacting to his environment. That’s what we need Matt, keep it up! He is slowly, day by day coming back. We’ve been getting him up in a chair down stairs and outside now since last Thursday and it really seems to be livening him up. He sits out and watches the people passing by, the wind in the trees, reacts to all the sounds, the sunset. He’s coming back a little bit everyday, it’s all good.
I have another meeting with the Kaiser crew the end of this week so will see what gets resolved, can’t wait to get him out of that place, I know he’s looking forward to it also, we all tell him all the time. Keep you all posted as things develop
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Hey Everyone, Just to give you all the latest. Matt continues to improve, steady small steps but it’s all coming together. The most dramatic thing of all is that he is starting to verbalize. Not as clear and we all speak but there’s been enough of it this week that all the nurses have taken notice and are all talking about it so that’s really good to hear. From what it sounds it’s not just nonsense. He told a couple of the nurses that were in his room doing I’m not exactly what but were talking about something accident related and he spoke up and said ” stop talking “, don’t know, I wasn’t there, but that’s what they told us on Saturday. Matt has on more than one occasion told a nurse “no” when they are about to do something that he doesn’t like. We have all noticed with certain subjects like auto accidents along with certain people that come in seem to set him off and make him anxious so we think that that is all a good thing because with this and other things we ask of him and the way he responds seem to clearly indicate understanding and processing of verbal conversation. One thing that is a huge step is getting Matt to swallow on command now and I have gotten him to do it for me and for a couple of nurses who have documented it in Matt’s file for all to see. Even with these improvements all the doctor that’s rounding this month and the case manager seem concerned with is saving cost and sending Matt home.
This weeks hurdle seems to be the direction of Matt’s additional treatment. Lisa and I have been in communication with several people that have been in our situation along with other institutions in the Southern California area that treat patients with Matt’s injury. The overwhelming consensus is that Matt should go to rehab first before coming home. Kaiser Permanente seems to be moving away from this and have indicated that Matt needs to come home regardless of what we read or who we are talking too.
I ask for all your continued positive thoughts and prayers for Matt’s continued improvement, strength to guide us through this continuing trying time in our lives and that the doctors, case managers and the other “powers that be” as Kaiser doctors seem to put it, will look at Matt as the smart, talented, wonderful and very loved young man that he is and make the right decision for Matt, not just look out for the most “cost effective way for the company” that seems to blind so many institutions in these “quality of life” and “continuity of care” decisions that can affect so many people for a lifetime whendecisions are made with and ulterior motive and not the care and compassion that health care should be all about. “Thrive”, what does that really mean and for whom is it directed?
I will update this blog as things develop. Thanks for all your support.
Mario
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In an attempt to make things easier for Mario himself to communicate Matt’s progress, we made a new blog. Special thanks to Kristin for keeping us all updated thus far. You can still access her past blog posts on the right, along with a feed from Lindsey’s blog. Take it away Mario.
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